Annual Seminar and AGM - will be in Hamilton next year (2012) in May

 

Most recent newsletter

Annual report (2011)

New feature!  Area Contact Persons   See this listing to contact someone with your form of dystonia and in your area for advice and support 

Dystonia is a neurological movement disorder characterised by inappropriate and  involuntary muscle movements.  It is often misdiagnosed.  The disabling, repetitive and sustained muscle spasms typical of dystonia are thought to be due to malfunction of a particular part of the brain, the basal ganglia.  Dystonia is either:

1          Generalised - most common in young patients 2          Focal - starts in adulthood, affecting one or more parts of the body Examples: spasmodic torticollis (cervical) blepharospasm spasmodic dysphonia (laryngeal) oromandibular  writers cramp Place affected: neck, shoulders muscles around the eye voice jaw/mouth wrist/hand

The New Zealand Dystonia Patient Network was founded in 1992 and currently has over 300 members.  By subscribing, you will be put in contact with other dystonia patients and receive a regular newsletter.  There are several support groups in both the North Island and South Island.

Our 3-fold mission is:
• To support dystonia patients with information, advice and networking opportunities
• To increase awareness about dystonia – both among the medical community and the general public
• To encourage and facilitate research, with the aim of seeking better treatments, prevention, a cure

Join, donate or renew membership

 (c) 2011 New Zealand Dystonia Patient Network Inc. 
  Contact webmaster:  webmaster@dystonia.org.nz